Just wanted to share this with you all. This is from my life long friend who is now a nurse in the military. Very uplifting and makes me feel better that I am such an OCD parent when it comes to my kids' health.
Quote:
Wow,
That was a lot to take in. I had no idea what you were going through. Are
you still going to SC this month? I got an invite from your mom but I can't
travel anymore until after Jayda is born.
I made some phone calls to some DR's that are friends of mine and they said
that the majority of infants that don't survive their first year because of
Edwards Syndrome is because the Pediatricians just keep treating symptoms
and fail to do the proper testing early on for this specific issue. Meaning
that when an infant has the reflux, the breathing issues, the apnea (which
all ties together) they are at higher risk for SID's. The reason is because
they aren't on the machine that alarms you if your child stops breathing, So
parents are only checking on the baby every 3-4 hrs and if the baby doesn't
wake them up and the parent doesn't set an alarm then they may not find the
baby until it's too late. You have B on a machine, you set your alarm for
constant checking and you are already having this testing done early on. You
are way ahead of the statistics that you keep reading about. I know that
doesn't make it any easier on you but statistically speaking B has much
better survival chances than all your statistics because of your
implementations in place. Please keep me informed.
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1 comment:
That is great news! :) It was so nice of her to do that and give you some relief. By the way, I'm in SC too! lol. I hope things are looking up today!! :)
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